Stephen’s story is one of remarkable resilience, determination, and optimism. He was born profoundly deaf. Later, he was diagnosed with Usher syndrome, which affects both hearing and sight. Stephen’s journey has been filled with challenges. But, he has met them head-on with unbreakable spirit. From a young age, he faced losing his side vision. By age 40, he had to give up his driver’s licence as his vision got worse. Now in his 50s, Stephen navigates life with vision that is limited to two cloudy tunnels, but his outlook on life remains clear and bright.
Despite the significant obstacles, Stephen has never let disability define him. Instead, he has embraced it, finding new ways to communicate and stay active. He is learning tactile New Zealand Sign Language (NZSL) from Laura Morse, Deafblind Coordinator at Blind Low Vision NZ. This prepares him for a time when he might lose his sight and can’t see sign language. His dedication to tactile communication also helps him stay connected with his wife and two hearing children.
Stephen’s love for physical activities remains unbridled. Though he can no longer run as much due to the impact on his vision, he enjoys fast-paced walking, cycling, attends events organised by Blind Sport NZ, and swimming. “I can swim independently by following the black line along the bottom of the pool. I can see this as there is good contrast,” says Stephen. He also practises swimming with a guide and a tether.
His passion for sports led him to try wheelchair rugby, which he recounts with humour: “I was sent off for crashing too many times,” he says with a laugh. “Running has been a hard slog at times, but I’m determined to keep active,” says Stephen, referring to the support of his guide from the Achilles running group.
The services from Blind Low Vision NZ have been instrumental in Stephen’s journey. From learning Braille to using a white cane and accessing sport and leisure services, Stephen uses every resource available to maintain his independence and quality of life. “Stephen’s progress with tactile NZSL has been impressive, and his determination is truly inspiring,” notes Laura Morse.
Stephen’s newest passion is tandem biking, a sport that offers him a sense of freedom and excitement. Michelle Mackie, a Community and Volunteer Coordinator, has also been a key part of Stephen’s support network. “Stephen’s new tandem bike has opened up new opportunities for him. It’s lightweight and fast, and he’s thrilled with it,” says Michelle. With the bike, Stephen now plans to enter a triathlon, combining his love for cycling, swimming, and running.
Stephen’s optimism, his pursuit of new goals, and his commitment to staying active and connected with his loved ones make him a beacon of inspiration for us all.
Image description: From left to right, Jono (volunteer), Stephen and Michelle (Community and Volunteer Coordinator) smiling brightly with their thumbs up as they stand in front of a tandem bike on the sidewalk/ shop front.
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