Age Related Macular Degeneration: A Guide for Patients and Families

An age related macular degeneration (AMD) diagnosis can feel daunting. AMD is a leading cause of vision loss for people over 50 here in New Zealand, and it affects thousands of Kiwis. If you or a loved one has been recently diagnosed, we’re here to help you understand the condition, its impact on daily life, and how to access the resources and support you need.

What is Age Related Macular Degeneration?

AMD affects the macula, a part of the eye essential for clear, central vision. This is the vision you rely on for activities like reading, driving, and recognizing faces. AMD doesn’t cause complete blindness, but it can make tasks that require clear central vision more challenging.

Types of AMD

AMD has different stages. There are two forms of late-stage AMD:

• Dry Aged Related Macular Degeneration is the more common form, progressing slowly over time as the cells in the macula break down. People with dry AMD may notice a gradual blurring or distortion in their central vision.
• Wet Aged Related Macular Degeneration is less common but more aggressive. It occurs when abnormal blood vessels form under the retina which can bleed, and may cause a sudden change in your vision. There are treatment options available to help stop or slow down the damage.
  People with dry AMD can develop wet AMD.

Early Signs of Age-Related Macular Degeneration

If you’ve been diagnosed, you may have already noticed symptoms like: 

• Blurry vision 

• Distortion, where straight lines appear wavy or uneven 

• Difficulty reading or recognizing faces 

• Dark patches or blank areas in your vision 

• Difficulty seeing when going from light to dark spaces 

Regular eye checks with an eye specialist are essential for managing AMD and monitoring any changes in your vision. Early treatment can help slow AMD’s progression and improve quality of life. 

Getting your eyes checked as soon as you notice a change in your vision is important. If you notice any sudden or unusual change in your vision, make an appointment to see your eyecare provider. 

Managing Age Related Macular Degeneration

While there’s no cure for Age Related Macular Degeneration, Blind Low Vision NZ provides a range of services and resources to help you adapt and live fully with AMD. Here are some steps you can take with our support: 

• Access Low-Vision Aids: We offer access to low-vision aids that make daily tasks easier. These include magnifiers, high-contrast devices, and digital aids that enhance visibility. 

• Practical Support Services: Such as getting around your community safely and confidently and learning easier ways to do things at home. 

• Tailored Technology: Our adaptive technology experts can help you learn easier ways to use your phone and other technology, like text-to-speech apps, screen readers, and larger screen settings, to make reading and technology use more accessible. 

• Support and Community: Age Related Macular Degeneration can feel isolating, but our support groups and peer networks provide a space for you to connect with others who understand your journey. Sharing experiences and learning from others facing similar challenges can be both comforting and empowering. 

 

Lifestyle changes, such as stopping smoking, eating a balanced diet rich in leafy greens and omega-3s, regular exercise, and wearing UV-protective sunglasses, can also support eye health. Talk to your healthcare provider about supplements, as some studies suggest zinc and antioxidant supplements may benefit certain people with AMD. 

 

 

Macular Degeneration New Zealand provides education and information on AMD, including resources about the disease, the treatment options, and how to care for your eye health. MDNZ also provides support for people with AMD and their families and raises awareness of AMD in the wider community.

How Families Can Support Loved Ones with Age Related Macular Degeneration

Supporting a family member with Age Related Macular Degeneration is important. Here are some ways you can help them adjust and stay independent: 

• Encourage Regular Eye Checks: Routine eye exams are crucial for tracking AMD’s progression and exploring treatment options. Monitor your vision using an Amsler Grid and report any changes to your eye specialist. 

• Be Patient and Understanding: AMD can cause frustration with tasks that used to be easy. Encourage them to do things at their own pace and offer help when needed. 

• Learn about AMD and Resources: Understanding AMD can help you empathise with your loved one’s challenges and encourage them to use resources like those offered by Blind Low Vision NZ. 

Our Commitment to You

At Blind Low Vision NZ, we are committed to helping New Zealanders with AMD live fulfilling lives. We offer guidance on adapting to vision changes and provide low-vision aids, mobility training, and emotional support. With the right resources and support, living with AMD doesn’t mean giving up on the activities you love. Whether it’s learning to use assistive devices, adjusting your home for comfort, or joining a community of others with AMD, we’re here to help you every step of the way. 

To register yourself or a family member for Blind Low Vision NZ services, please complete our new client registration form. We’re here to ensure that vision loss doesn’t mean a loss of independence or quality of life. Let us help you navigate this journey with confidence and hope.